We recently began a few new projects:
Lupus, or Systemic Lupus Erythematosus (SLE), is is a chronic inflammatory disease that can affect various parts of the body. In the US, there are about 500,000 to 1.5 million people with this autoimmune disease.
FCAS, or familial cold autoinflammatory syndrome, is a rare genetic condition caused by a genetic mutation. FCAS is characterized by fever, rash, chills, joint and muscle pain and fatigue brought on by exposure to cold. For now, the FCAS study is short-term and uses its own questionnaire.
The NDB is wrapping up a project called HERO we did with the RA medication Humira, and we’ve invited all HERO study participants to join the NDB and take our regular questionnaires as an ongoing follow-up.
If you’re new to the NDB, we welcome you! You are making a valuable contribution to medical research, and we sincerely appreciate the effort, time and attention it takes.