News and information about the National Data Bank for Rheumatic Diseases (NDB) and arthritis and rheumatology research. Written for NDB participants and anyone with a rheumatic disease.
March brings Juvenile Arthritis Awareness Week
"When most people think of arthritis they don't associate it with children. The most popular misconception about arthritis is that it is an old person's disease. In reality, arthritis affects people of all ages including about 285,000 American children." - from arthritis.about.com - Arthritis: A Children's Disease Too
¶ Wednesday, February 25, 2004
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Monday, February 23, 2004
NDB Research: Heart Failure in RA & Anti-TNF Effects
CONCLUSION: Our results suggest that rheumatoid arthritis increases the risk of heart failure, which may be ameliorated by anti-TNF therapies. from - American Journal of Medicine, 2004;116:305–311. From the NDB website in Adobe PDF format.
¶ Monday, February 23, 2004
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Friday, February 20, 2004
Why does arthritis affect more women than men?
"Women are four-times as likely to develop arthritis, nine-times as likely to have lupus, and twice as likely to have multiple sclerosis. Men, on the other hand, are four-times as likely to develop autism and twice as likely to develop Parkinson’s. Why do these diseases affect men and women differently?" - from Ivanhoe - Destiny: Is it in the Genes? Battle of the Sexes
¶ Friday, February 20, 2004
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Thursday, February 19, 2004
Fibromyalgia patients improve with self-treatment
"A 6 week self management based programme of pool exercises and education can improve the quality of life of patients with FM and their satisfaction with treatment. These improvements are sustained for at least 6 months after programme completion.
" - from Annals of Rheumatic Diseases -- Abstracts: Cedraschi et al. 63 (3): 290
¶ Thursday, February 19, 2004
NDB research on RA, Tuberculosis and Infliximab
You may have seen this article mentioned in the NDB newsletter or on the website. Here's the full article from Arthritis & Rheumatism, another example of how your participation in the NDB contributes to important research.
"Conclusion. The rate of TB is not increased in RA patients generally... A thorough medical history regarding TB, as well as tuberculin testing and radiographic examination (if indicated), should be an essential component of anti–tumor necrosis factor therapy." - from the NDB website in Adobe PDF format (Adobe Acrobat reader required).
¶ Wednesday, February 11, 2004
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Love, Sex, And Arthritis: some Valentine's Day advice
"Around Valentine's Day, feeling good about yourself and feeling close to the one you love is very important. Rising above those feelings of being sick and tired to feelings of being loved, valued, and comforted is vital." - from arthritis.about.com Love, Sex, And Arthritis
¶ Wednesday, February 11, 2004
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Tuesday, February 10, 2004
Can you afford the co-pays?
Join this discussion at the NDB Forum: "I was just wondering if any other members have trouble buying the medications that they really need to take, but find it hard to afford the co-pays. I am on disability but not on Medicare yet. I take about ten different meds and it is very hard each month to come-up with the co-pays. Is it the insurance companies trying to make a profit or the drug manufacturers?" - National Databank Forum: Insurance Co-Pays
Did you know you can be notified automatically when someone posts to a forum that interests you? Look for this link "Watch this forum for new posts" at the forum level. You must be registered and signed in to use this feature. It's free to join and use.
The National Data Bank for Rheumatic Diseases (NDB) performs unique clinical
research in rheumatoid arthritis, osteoarthritis, fibromyalgia, lupus and other
rheumatic diseases, designed to improve the treatment and outcomes of these conditions.
The NDB is the largest patient-reported research databank for rheumatic diseases in
the United States. We report to the rheumatology community in peer-reviewed journals
and at the major scientific conferences.
You are invited to join us in our work, either as a person with a rheumatic disease
who would like to join the study, or as a physician or researcher who wants to help
and use our databank and research services, including data collection tools and database support.
The NDB is an independent, non-profit research group.
All information within the NDB web log, including links away from this site,
is for educational purposes only. Nothing presented here should be taken to be medical advice.
Website
All about the NDB, with special sections for Patients, Physicians and Researchers.
We Need You!
You can make a difference in Arthritis Research! Consider volunteering a bit of your time for the improvement of treatment and outcomes of rheumatic diseases.
Can you use our new pamphlet? Now available for your support group or arthritis meetings....Our new pamphlets explain what we do and how you and can help. Each one has a postage-paid postcard to request more information or join the project. The pamphlets and a small table-top stand are available free from the NDB. Just send us an email!
Refer a Friend
If you know anybody who might also be interested in participating, we'll send them a note telling them that you think they'll be interested.
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NDB Participants: Please notify us when you change your email address. It's the best way for us to keep you up to date about your involvment in NDB activities.
Useful Links
More resources and information about rheumatic diseases.
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Discuss your participation in the NDB, ask questions of NDB staff, comment on arthritis news, or discuss your illness.