News and information about the National Data Bank for Rheumatic Diseases (NDB) and arthritis and rheumatology research. Written for NDB participants and anyone with a rheumatic disease.
Contact the NDB     Enroll in NDB Research     NDB Forum

Tuesday, May 31, 2005
How to find a good arthritis website
A new study published in the American Journal of Health-System Pharmacy looks at what makes a good arthritis website. The authors found that the quality of arthritis information on the Internet varied widely. In general, sites ending with .gov and .edu were better. Here's the authors' list of suggestions for evaluating a medical information website:

- from American Journal of Health-System Pharmacy

 
Tuesday, May 24, 2005
Cough medicine for fibromyalgia?
"Florida researchers said dextromethorphan, an ingredient in over-the-counter cough medications, may help reduce the pain of fibromyalgia.... Laurence Bradley, a fibromyalgia expert at the University of Alabama at Birmingham, said although the findings look promising, it's too soon for patients or physicians to use dextromethorphan to treat the disorder. More research needs to be done to determine how to reduce the risk of side effects, Bradley said." - from MedlinePlus:
 
Thursday, May 19, 2005
Remicade OK'd for Psoriatic Arthritis
"The U.S. Food and Drug Administration has announced its approval for Remicade, made by Johnson & Johnson's Centocor divison, to be used 'to reduce the signs and symptoms of active psoriatic arthritis.' This type of arthritis demonstrates rashes and skin lesions along with joint inflammation." - from HealthDay
 
Monday, May 16, 2005
Future RA therapy in the very early stages?
"Scientists studying mice have identified a gene that allows immune cells known as neutrophils to protect themselves from the inflammatory chemicals they secrete. Researchers at Washington University School of Medicine in St. Louis showed that knocking the gene out in mice prevented the development of an arthritis-like disorder by making the neutrophils victims of their own damaging secretions....'We already know a great deal about Foxo3a from studies of its role in some cancers, and hopefully that puts us in a good position to devise ways to manipulate its activity,' says senior author Stanford Peng, M.D., Ph.D., assistant professor of medicine and of pathology and immunology. 'If the human version of this gene functions in a similar fashion, modifying its activity may be a useful approach for arthritis therapy even when the disease is already well underway.'" - from Medical News Today
 
Friday, May 13, 2005
Advance in Lupus treatment?
"Tests that spot heightened expression of a specific group of genes could improve the treatment of lupus patients, according to a new report. The finding also provides important new insight into the role that interferon -- a protein key to the immune response -- plays in the progression of systemic lupus erythematosus (SLE). SLE, which is characterized by the production of autoantibodies throughout the body, affects women more than men and can cause problems ranging from skin rash and joint pain to kidney failure and stroke, the researchers said." - from HealthDay
 
Tuesday, May 03, 2005
Rheumatoid Arthritis Symptoms Worse in African Americans
"African Americans with rheumatoid arthritis report more severe disease and more disability than whites with the disease, a new study shows.... The study also found African Americans had more other illnesses than whites did, were less likely to be taking, or to have taken, disease-modifying antirheumatic drugs, and had significantly lower self-sufficiency scores. After adjusting the data for the possible effects of socioeconomic factors, the researchers found that race was no longer independently associated with rheumatoid arthritis disease severity. " - from MedlinePlus
 
WELCOME!

The National Data Bank for Rheumatic Diseases (NDB) performs unique clinical research in rheumatoid arthritis, osteoarthritis, fibromyalgia, lupus and other rheumatic diseases, designed to improve the treatment and outcomes of these conditions.

The NDB is the largest patient-reported research databank for rheumatic diseases in the United States. We report to the rheumatology community in peer-reviewed journals and at the major scientific conferences.

You are invited to join us in our work, either as a person with a rheumatic disease who would like to join the study, or as a physician or researcher who wants to help and use our databank and research services, including data collection tools and database support.

The NDB is an independent, non-profit research group.

All information within the NDB web log, including links away from this site, is for educational purposes only. Nothing presented here should be taken to be medical advice.

NDB NEWS
Reading this blog with an RSS feed
Have a problem with your NDB questionnaire?
Which web browser can you use?
Get your patient recruitment pamphlets!
Checking in with Dr. Benito-Garcia
Alternate WebQuest Login / E-mail problems
WebQuest or Paper? Did you get both? Which should you do?
Fatigued? Or tired?

NDB LINKS
Website
All about the NDB, with special sections for Patients, Physicians and Researchers.

We Need You!
You can make a difference in Arthritis Research! Consider volunteering a bit of your time for the improvement of treatment and outcomes of rheumatic diseases.

Can you use our new pamphlet?
Now available for your support group or arthritis meetings....Our new pamphlets explain what we do and how you and can help. Each one has a postage-paid postcard to request more information or join the project. The pamphlets and a small table-top stand are available free from the NDB. Just send us an email!

Refer a Friend
If you know anybody who might also be interested in participating, we'll send them a note telling them that you think they'll be interested.

Update Your Email
NDB Participants: Please notify us when you change your email address. It's the best way for us to keep you up to date about your involvment in NDB activities.

Useful Links
More resources and information about rheumatic diseases.

Open Forums
Discuss your participation in the NDB, ask questions of NDB staff, comment on arthritis news, or discuss your illness.

Contact Us

Search this Site

ARCHIVES
December 2003 / January 2004 / February 2004 / March 2004 / April 2004 / May 2004 / June 2004 / July 2004 / August 2004 / September 2004 / October 2004 / November 2004 / December 2004 / January 2005 / February 2005 / March 2005 / April 2005 / May 2005 / June 2005 / July 2005 / August 2005 / September 2005 / October 2005 / November 2005 / December 2005 / January 2006 / February 2006 / March 2006 / April 2006 / May 2006 / June 2006 / July 2006 / August 2006 / September 2006 / October 2006 / November 2006 / December 2006 / March 2007 / February 2008 / March 2008 /

Atom Site Feed
RSS Site Feed

Powered by Blogger