News and information about the National Data Bank for Rheumatic Diseases (NDB) and arthritis and rheumatology research. Written for NDB participants and anyone with a rheumatic disease.
Having a problem with your NDB questionnaire?
Did you get stuck while working on your questionnaire? If you need help, please contact us using the "Techinical Support" link at the top of your WebQuest questionnaire. The link will open up your email program and create an email that contains information we can use to help you get going again. You can also use Technical Support if you have a question about how to answer something.
If you are unable to open your questionnaire, please contact us by replying to the original email we sent you, the one with the link. This way we'll be able to double check the link. For any other questions about your participation in the study, please just send us an email at webquest@arthritis-research.org. We will get back to you ASAP, usually within 24 hours.
Thank you so much for all your help with the research. Don't hesitate to contact us if you have any questions.
¶ Tuesday, July 19, 2005
(0) comments
Monday, July 11, 2005
Even a pound can help
You've heard this before, but here's another study showing the benefits of losing weight for people with Osteoarthritis.
"Excess weight can contribute to the both the development and progression of knee osteoarthritis. The most common form of arthritis, osteoarthritis occurs when the cartilage cushioning the joints breaks down over time, causing inflammation, pain and stiffness.
Experts recommend that overweight and obese adults with knee arthritis lose weight and exercise to help manage the condition. But whether weight loss actually slows the progression of knee arthritis is not yet clear, Dr. Stephen P. Messier of Wake Forest University in Winston-Salem, North Carolina, and colleagues note in the journal Arthritis & Rheumatism.
In their study, the team tried to gauge the effects weight loss can have on arthritis patients' knee mechanics. The participants, all older adults with disabling arthritis symptoms, were part of a larger weight-loss study.
The researchers performed a 'gait analysis' of each patient at the beginning of the study, and 6 and 18 months later. As mentioned, they found that for each pound participants lost during that time, there was a four-fold greater reduction in the force going into the knee with each step they took." - from MedlinePlus
¶ Monday, July 11, 2005
(1) comments
Wednesday, July 06, 2005
Acupuncture May Do Little for Fibromyalgia
"Acupuncture appears to relieve the chronic pain condition fibromyalgia no better than sham acupuncture procedures, according to new study findings. The investigators found that people with fibromyalgia who received acupuncture for fibromyalgia twice per week for 12 weeks were no more likely to report decreases in pain than people who received acupuncture designed for a different condition, needles inserted into random locations, or simulated acupuncture without needles.... Up to 9 out of 10 people with fibromyalgia say they use at least one type of alternative medicine, including acupuncture. To investigate how well the treatment may work for this condition, Buchwald and her colleagues asked 100 people with fibromyalgia to try acupuncture or sham forms of the treatment, and to rate their pain levels up to 6 months after treatment." - from MedlinePlus
¶ Wednesday, July 06, 2005
(0) comments
WELCOME!
The National Data Bank for Rheumatic Diseases (NDB) performs unique clinical
research in rheumatoid arthritis, osteoarthritis, fibromyalgia, lupus and other
rheumatic diseases, designed to improve the treatment and outcomes of these conditions.
The NDB is the largest patient-reported research databank for rheumatic diseases in
the United States. We report to the rheumatology community in peer-reviewed journals
and at the major scientific conferences.
You are invited to join us in our work, either as a person with a rheumatic disease
who would like to join the study, or as a physician or researcher who wants to help
and use our databank and research services, including data collection tools and database support.
The NDB is an independent, non-profit research group.
All information within the NDB web log, including links away from this site,
is for educational purposes only. Nothing presented here should be taken to be medical advice.
Website
All about the NDB, with special sections for Patients, Physicians and Researchers.
We Need You!
You can make a difference in Arthritis Research! Consider volunteering a bit of your time for the improvement of treatment and outcomes of rheumatic diseases.
Can you use our new pamphlet? Now available for your support group or arthritis meetings....Our new pamphlets explain what we do and how you and can help. Each one has a postage-paid postcard to request more information or join the project. The pamphlets and a small table-top stand are available free from the NDB. Just send us an email!
Refer a Friend
If you know anybody who might also be interested in participating, we'll send them a note telling them that you think they'll be interested.
Update Your Email
NDB Participants: Please notify us when you change your email address. It's the best way for us to keep you up to date about your involvment in NDB activities.
Useful Links
More resources and information about rheumatic diseases.
Open Forums
Discuss your participation in the NDB, ask questions of NDB staff, comment on arthritis news, or discuss your illness.