News and information about the National Data Bank for Rheumatic Diseases (NDB) and arthritis and rheumatology research. Written for NDB participants and anyone with a rheumatic disease.
"A front-page article on Jan. 14 reported on an ad campaign for the first medicine approved for fibromyalgia, a chronic disorder characterized by widespread pain and fatigue, “whose very existence is questioned by some doctors.”" - click more from The New York Times
To clarify Dr. Wolfe's position, he thinks current research supports viewing fibromyalgia as a syndrome, not a disease. The symptoms are quite real and can be helped with treatment.
¶ Monday, February 18, 2008
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Tuesday, February 12, 2008
LFA Unveils New Lupus Education Materials
"The Lupus Foundation of America (LFA) is proud to unveil its new line of updated and revised lupus education materials. Five new booklets, eleven fact sheets and five quick guides provide the latest medically sound information about lupus diagnosis and treatment. The publications feature easy-to-read text within a colorful layout to help individuals with lupus and others learn about lupus and its consequences.
The new publications are appropriate for use at health fairs, doctors' offices, hospitals, schools, and education programs. Bulk orders of these new materials are available for purchase through the LFA store. Single copies are available by contacting the LFA Patient Navigator or any chapter office." - from Medical News Today
Depression not discussed during rheumatoid arthritis doctor visits
"Patients with rheumatoid arthritis (RA), the most common chronic inflammatory arthritis, are twice as likely as other individuals to experience depression. Although depression in primary care has been well studied, no studies have examined whether rheumatologists and RA patients discuss depression during medical visits. A new study published in the February issue of Arthritis Care & Research (http://www.interscience.wiley.com/journal/arthritiscare) found that patients whose activities were more restricted due to their arthritis were more than twice as likely to have moderately severe to severe symptoms of depression. It also found that few depressed patients discussed their condition with their rheumatologists and the subject was always brought up by the patients as opposed to the physicians." - from eurekalert:
¶ Friday, February 01, 2008
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WELCOME!
The National Data Bank for Rheumatic Diseases (NDB) performs unique clinical
research in rheumatoid arthritis, osteoarthritis, fibromyalgia, lupus and other
rheumatic diseases, designed to improve the treatment and outcomes of these conditions.
The NDB is the largest patient-reported research databank for rheumatic diseases in
the United States. We report to the rheumatology community in peer-reviewed journals
and at the major scientific conferences.
You are invited to join us in our work, either as a person with a rheumatic disease
who would like to join the study, or as a physician or researcher who wants to help
and use our databank and research services, including data collection tools and database support.
The NDB is an independent, non-profit research group.
All information within the NDB web log, including links away from this site,
is for educational purposes only. Nothing presented here should be taken to be medical advice.
Website
All about the NDB, with special sections for Patients, Physicians and Researchers.
We Need You!
You can make a difference in Arthritis Research! Consider volunteering a bit of your time for the improvement of treatment and outcomes of rheumatic diseases.
Can you use our new pamphlet? Now available for your support group or arthritis meetings....Our new pamphlets explain what we do and how you and can help. Each one has a postage-paid postcard to request more information or join the project. The pamphlets and a small table-top stand are available free from the NDB. Just send us an email!
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If you know anybody who might also be interested in participating, we'll send them a note telling them that you think they'll be interested.
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Useful Links
More resources and information about rheumatic diseases.
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Discuss your participation in the NDB, ask questions of NDB staff, comment on arthritis news, or discuss your illness.