News and information about the National Data Bank for Rheumatic Diseases (NDB) and arthritis and rheumatology research. Written for NDB participants and anyone with a rheumatic disease.
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Friday, March 28, 2008
Steroid for CFS and Fibromyalgia?
"Boosting levels of the stress hormone cortisol with low doses of hydrocortisone could help patients with chronic fatigue syndrome and fibromyalgia feel better, a California doctor says.

Kent Holtorf, MD, says the simple treatment carries significantly less risk and greater potential for benefit than widely accepted treatments for the two conditions. But chronic fatigue syndrome (CFS) and fibromyalgia experts who spoke to WebMD were not so sure." - more from WebMD
 
Sunday, March 23, 2008
ACTEMRA looks promising in RA study
"Patients with rheumatoid arthritis treated with Roche's ACTEMRA(TM) (tocilizumab) experienced significant and rapid reduction in the signs and symptoms of their disease, according to a study published in this week's issue of The Lancet. Results from the OPTION (TOcilizumab Pivotal Trial in Methotrexate Inadequate respONders) trial -- a Phase III international study -- demonstrated that RA patients achieved greater improvement of symptoms and a higher quality-of-life with ACTEMRA, an interleukin-6 (IL-6) receptor inhibitor, in combination with methotrexate, compared with methotrexate plus placebo." - more from Medical News Today

 
Tuesday, March 11, 2008
Lobbying for Lupus Research Funding
"On Tuesday, March 4th, advocates for the Alliance for Lupus Research (ALR), on behalf of the 1.4 million Americans with lupus, described their personal experiences with the disease to their Members of Congress. ALR Advocates visited nearly 100 Congressional offices, representing 21 states, and asked their Members to support lupus research funding through the Department of Defense's (DoD) peer reviewed medical programs." - more from Medical News Today
 
Friday, March 07, 2008
Pool Exercises May Offer Cost-Effective Help in Fibromyalgia
"Supervised exercises in a waist-deep pool of warm water may offer a cost-effective adjunctive therapy for fibromyalgia, investigators here reported. Despite adding to the cost of usual care for fibromyalgia, three hourly aquatic exercise sessions weekly for eight months fell well within economic standards for cost-effectiveness, Narcis Gusi, of the University of Extremadura, and Pablo Tomas-Carus, of the University of Evora in Portugal, reported online in Arthritis Research & Therapy." - more from MedPage Today
 
Monday, March 03, 2008
No Benefit to RA Found with Hormone Replacement Therapy
"Postmenopausal hormone therapy neither reduces the risk of rheumatoid arthritis nor eases the severity of the condition's symptoms, researchers here reported.

Participants in the Women's Health Initiative randomized to estrogen plus progestin were less likely to develop arthritis than those taking placebo, but the difference was not statistically significant, (HR 0.74, 95% CI 0.51 to 1.10), found Brian Walitt, M.D., M.P.H., of the Washington Hospital Center, and colleagues." - more from MedPage Today

 
WELCOME!

The National Data Bank for Rheumatic Diseases (NDB) performs unique clinical research in rheumatoid arthritis, osteoarthritis, fibromyalgia, lupus and other rheumatic diseases, designed to improve the treatment and outcomes of these conditions.

The NDB is the largest patient-reported research databank for rheumatic diseases in the United States. We report to the rheumatology community in peer-reviewed journals and at the major scientific conferences.

You are invited to join us in our work, either as a person with a rheumatic disease who would like to join the study, or as a physician or researcher who wants to help and use our databank and research services, including data collection tools and database support.

The NDB is an independent, non-profit research group.

All information within the NDB web log, including links away from this site, is for educational purposes only. Nothing presented here should be taken to be medical advice.

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