This edition has a wonderful personal story from Co-Director Dr. Kaleb Michaud on how rheumatoid arthritis has affected his family and how research is important to him not only for work, but personally. This edition also features an update on the International Dupuytren Data Bank (http://dupuytrens.org/), information on the organization MotherToBaby (http://mothertobaby.org/), and updates on other projects and the latest research from the NDB.
Learn more about the new International Dupuytren Data Bank and the latest NDB research from the 2015 American College of Rheumatology Meeting. Also in this edition, information about the non-profit group the International Foundation for Autoimmune Arthritis (http://www.IFAutoimmuneArthritis.org).
This edition has an update from Co-Director Kaleb Michaud, PhD discussing how participants are the key to NDB research, questionnaire changes, and personal connections. Research news from EULAR, NDB projects, and the Arthritis Internet Registry (AIR). And as always, information about NDB Questionnaires and Primary Diagnosis, the online questionnaire and patient reports, and ways to help out the NDB.
This issue covers some of the research that NDB presented at the 2014 American College of Rheumatology, Director's Notes on questionnaires, helpful tips for participants and other information about the NDB.
This edition has an update from the Directors of the NDB discussing the new Ginger.io smart phone app, news about the Arthritis Internet Registry (AIR), as well as an update about the fibromyalgia survey analysis currently underway. News about NDB Questionnaires and Primary Diagnosis, changes to the Lupus Questionnaire, Latest research tidbits, and ways to help out the NDB are also in this Newsletter.
This edition of the NDB Research Newsletter has updates on currently published research from the data collected in the NDB along with information on future studies. The Athritis Internet Registry is pleased to announce the addition of Dr. Peter Gregerson to the team. The newsletter also has information about the NDB.
This edition of the NDB Newsletter has an amazing personal story in the Notes from the Directors section written by Dr. Kaleb Michaud describing the impact of growing up with juvenile rheumatoid arthritis, and later how it has shaped his desire to aid others who live with arthritis. This edition also features another personal account written by NDB participant Fara Hentsch, detailing how she manages her rheumatoid arthritis and tips for incorporating exercise into your daily routine.
Featured in this edition of the Newsletter Notes from the Directors section discusses the rise of patients dealing with Gout, thus the creation of a new custom questionnaire that the NDB will use to address the specific flare cycle gout patients deal with. Also, the NDB has teamed up with DatStat to create an easier to use online survey questionnaire.